News Summary
The 2025 EndoRISE Fall Forum, held at The Jackson Laboratory in Farmington, CT, brought together leaders in science, medicine, and advocacy to address endometriosis diagnosis and treatment. The event emphasized collaboration to improve women’s health and highlighted innovative research and technologies. Discussions focused on the complexities of endometriosis, the need for better diagnostic tools, and the importance of advocacy in driving progress. Initiatives like EndoRISE aim to enhance understanding and care for the estimated 200 million individuals affected worldwide.
Farmington, CT – Leaders from across the scientific, medical, policy, and patient advocacy communities recently gathered at The Jackson Laboratory (JAX) in Farmington for the 2025 EndoRISE Fall Forum. This crucial event, held on December 8, 2025, aimed to speed up new discoveries in endometriosis research and improve patient care, bringing together a wide range of experts and concerned individuals, both in person and through a global online broadcast. The forum focused on tackling the difficult challenges of diagnosing and treating endometriosis and promoting teamwork to better women’s health both nationwide and worldwide.
Organized by EndoRISE, a state-supported initiative spearheaded by leaders from JAX and the University of Connecticut School of Medicine, the forum provided a lively setting for discussions on major hurdles and exciting new developments in endometriosis care. Attendees included researchers, doctors, lawmakers, patient advocates, and industry representatives, all sharing a common goal: to better understand this painful disease and raise awareness about it. Established in 2023, the EndoRISE initiative is the first of its kind at the state level, designed to tackle endometriosis from many different angles.
Addressing the Complexities of Diagnosis and Treatment
A main topic at the forum was the ongoing difficulty in diagnosing and treating endometriosis, along with the historical challenges of getting attention for conditions that primarily affect women. Endometriosis is a condition where tissue similar to the lining inside the uterus grows outside it, impacting an estimated 200 million individuals worldwide. In the United States alone, approximately 6.5 million individuals are affected, and one in ten people in Connecticut suffer from the disease. Despite how common it is, the causes and biology of endometriosis are still not well understood, often leading to reliance on invasive diagnostic procedures and a lack of definitive treatments or cures. It is also a leading cause of hysterectomies among individuals of reproductive age.
Discussions at the forum highlighted the urgent need for diagnostic tools that are less invasive and for more effective ways to manage the condition. Current diagnostic methods often involve significant delays and incorrect diagnoses due to the complex and varied symptoms of endometriosis. Managing the condition for life frequently requires therapies such as hormone treatment, surgical interventions, and changes in lifestyle, emphasizing the critical need for deeper scientific insight and better options for patients.
Pioneering Research and New Technologies
The forum highlighted advanced breakthroughs and innovations in several key areas of endometriosis care. Scientific presentations covered new ways to diagnose the condition, including the potential use of menstrual blood for detection and studies into genetic connections. Researchers also explored interesting links, such as the relationship between Lyme disease and endometriosis. Surgical and clinical viewpoints on improving care were also shared, alongside a focus on medical therapies and scientific discovery.
Technological innovations were a major theme for improving diagnostic capabilities. These include improvements in imaging techniques like high-resolution ultrasound and magnetic resonance imaging (MRI), which offer better views of endometrial lesions and can help with pain management strategies. Advanced techniques such as PET scans are also being investigated for more precise identification of lesions. Furthermore, the use of artificial intelligence (AI) and machine learning is proving transformative, making the interpretation of imaging results better and assisting in clinical decision-making by finding patterns that traditional analysis might miss. The forum also touched on the promise of nanotechnology in developing accurate and non-invasive tools for biomarker detection, which could revolutionize early diagnosis without the need for surgery. The importance of collaborative research in developing these less invasive diagnostic tools was strongly emphasized.
Advocacy and Community-Driven Progress
Patient advocacy and community involvement were stressed as crucial elements in driving progress for endometriosis care. Panel discussions featured representatives from leading patient advocacy organizations, who shared their experiences on ongoing challenges, advancements, and future directions. A “Fireside Chat” brought together leaders from major advocacy groups, reinforcing the power of community in transforming personal struggles into scientific breakthroughs.
State Representative Jillian Gilchrest pointed out the significant suffering experienced by women in Connecticut due to endometriosis, noting that many have silently endured the condition for too long. She emphasized that events like the EndoRISE Fall Forum bring much-needed attention to the disease and the real-life experiences of those affected. The partnerships formed at the forum are expected to create a strong foundation for progress, not only at the state level but also nationally and beyond. The shared mission of increasing disease recognition, providing advocacy, and supporting education efforts was a powerful message throughout the event.
Looking Ahead
The 2025 EndoRISE Fall Forum reaffirmed the strong commitment of JAX and the University of Connecticut to improving women’s health and encouraging robust collaboration among researchers, clinicians, and the patient community. By bringing together various interested parties, the forum aims to accelerate the development of better treatments and outcomes for the millions affected by endometriosis worldwide. The ongoing investigation and collaborative efforts championed by initiatives like EndoRISE are considered essential for moving beyond invasive diagnostics and establishing definitive treatments or a cure for this complex disease.
The forum’s focus on scientific ingenuity and teamwork across different fields highlights a proactive approach to addressing a condition that has historically faced delays in diagnosis and limited treatment options. The collective efforts initiated at the EndoRISE Fall Forum are expected to pave the way for a future where endometriosis is better understood, more effectively diagnosed, and comprehensively managed, ultimately improving the quality of life for affected individuals.
Frequently Asked Questions (FAQ)
- What was the 2025 EndoRISE Fall Forum?
- The 2025 EndoRISE Fall Forum was a pivotal event that united leaders from across scientific, medical, policy, and patient advocacy communities to advance innovation in endometriosis research and care.
- When and where did the forum take place?
- The forum took place on December 8, 2025, at The Jackson Laboratory (JAX) in Farmington, Connecticut, and was also streamed virtually to participants worldwide.
- Who organized the EndoRISE Fall Forum?
- The forum was organized by EndoRISE, a state-supported initiative led by The Jackson Laboratory (JAX) and the University of Connecticut School of Medicine. The initiative was established in 2023 through a collaboration between JAX, UConn Health, and Connecticut’s Endometriosis Working Group.
- Who attended the forum?
- Attendees included researchers, clinicians, policymakers, patient advocates, and industry partners.
- What were the key topics discussed at the forum?
- Key topics included the complexity of diagnosing and treating endometriosis, barriers to care, and the historic challenges of drawing attention to conditions primarily affecting women. Discussions also covered advancements in surgical approaches, medical therapies, scientific discovery, and novel diagnostic methods.
- How many people are affected by endometriosis?
- Endometriosis affects an estimated 200 million individuals worldwide, including about 6.5 million in the United States and 1 in 10 people in Connecticut.
Key Features of the EndoRISE Fall Forum
| Feature | Description | Geographic Scope |
|---|---|---|
| Event Name | 2025 EndoRISE Fall Forum | State-level (Connecticut-based initiative), Global (virtual attendance) |
| Date | December 8, 2025 | N/A |
| Location | The Jackson Laboratory (JAX), Farmington, Connecticut | State-level |
| Organizers | EndoRISE (JAX, University of Connecticut School of Medicine, Connecticut’s Endometriosis Working Group) | State-level initiative with nationwide and worldwide impact goals |
| Attendees | Researchers, Clinicians, Policymakers, Patient Advocates, Industry Partners | N/A |
| Primary Goal | Advance innovation in endometriosis research and care | Nationwide and Worldwide impact goals |
| Key Discussion Areas | Diagnostic and treatment complexities, barriers to care, novel diagnostic approaches, scientific discoveries, patient advocacy | N/A |
| Endometriosis Prevalence | Estimated 200 million individuals worldwide; 6.5 million in the United States; 1 in 10 in Connecticut | Worldwide, Nationwide, State-level |
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